Month: February 2014

That Girl that Comes to See Me

One of the other mental health issues that Ruby was diagnosed with was Dementia. Not Alzheimer’s disease but dementia nevertheless. There have been times when not even the psychiatrist could tell whether she needed more psychotropic drugs or if it was the dementia that affected her behavior.

 For example, there was a period of time when Ruby refused to acknowledge me as her daughter. She would never say my name and along with this, she refused any forms of physical affection. My mother has never been a really affectionate person to begin with but during this period it was a lot worse. She was repelled by me. No, nothing had happened at this point between us. It was just the way she felt.

 There was really no proper way to resolve her issues during this time. I definitely did not want her to be medicated with more psychotropic drugs. The dosages she was on were pretty substantial already. I chose to accept my new moniker, “that girl that comes to see me.” This didn’t stop her from sending me to the store to buy toiletries or her fast favorite foods. Was I hurt by this? Yes, but I had come to accept that even when things were ugly between us, I would still be there.

 Some would say that this was a wonderful thing to do for Ruby. But, I had to implement some type of protocol to protect my own emotional wellbeing. After all, this is not some random patient-this is “my” mother. When she would not take her medications, her behavior became particularly ugly. During these times I would: limit my visits to ten minutes; decrease the visits per week; call the board and care to ask about her condition; make sure that she had the minimum of toiletries; and lastly, screen all phone calls from her.

 Some may say, “That was cruel! She was your mother!!” I say that I did fulfill my role as her daughter.  First, she was in a safe place. Second, I kept looking for resources to help her. It is very, VERY difficult to find a psychiatrist who specializes in geriatric care but I finally did because of my job (…will explain later). I physically checked on her enough to make sure that she was not being abused or being abusive. Ruby did not want for food or clean clothing. She could no longer be trusted in a house alone. As a working adult, I used the limited options that I had but didn’t relinquish my role as a daughter. As that girl that used to go see her, I learned self-preservation of my own emotional well-being and am the better for it.

Therapy

Chil if I need to talk to someone about my troubles, I just call on the Lord.
and/or
What I need with some psychologist telling me what to do? I ain’t paying nobody to tell me something obvious.

These are some of the reasons I have heard over the years on why many African America people do not seek therapy. I’ll be the first to say that this attitude is slowly, ever so slowly changing. Now, that there are books published by African Americans about mental illnesses such as depression, there are more (usually younger adults) who acknowledge that we too, can become mentally ill.
I am diverging from the topic of Ruby a bit because this topic has been on my mind for quite some time and I wanted to blog about therapy and its role in helping individuals with their mental health issues. First, I wanted to speak on what it is NOT.

Many of us have watched t.v. shows such as Dr. Phil where the host presents individuals who are in a situation or have a mental health issue. The host usually chastises the individual depending on the situation such as situations of spousal abuse, the host quickly makes an assessment: “You need to leave” or for someone who is a drug addict: “You need to get help.”
I agree with the conclusions but not the process because everything has to be placed in context. Most shows are approximately 45-50 minutes (commercials cut into that hour slot) so we do not get to see how individuals evolve which is one of the major goals of therapy.

You cannot solve a mental health issue in 45-50 minutes and what we are watching is NOT therapy but entertainment with a slice of applied psychology. Therapy is the hard work of changing, adjusting, relearning and acceptance all of which can be difficult if not downright painful. Therapy is not the process of a therapist cosigning our perceptions about ourselves and our lives; especially if our assessments and behaviors undermine and cause harm. Our friends will say, “Uh-huh, you need to leave that alone.” Our pastors may say, “Pray about it.” Therapy challenges us with questions such as, “Why are you here and how does it benefit you?”

The Shroud…

For many years, I wore a shroud of shame about my background because it remained visible yet silent. How could I explain her behavior when I didn’t understand what was going on? Nothing that she said or did could be attributed to alcohol or substance abuse. In fact, my mother was and continues to be vehemently against the use of street drugs and drinking. Other families whose parents had a substance abuse problem had a tangible thing that they could point to: “My mother/father is a drug addict/alcoholic” to explain their episodes of madness or neglect. Mental illness however, has no obvious causes even though it can be exasperated by stressors like experiencing and/or witnessing violence, death of a loved one, loss of a job and the most important of all- being African American in American society. It is not uncommon for an individual experiencing mental illness to abuse drugs or alcohol to alleviate or reduce the symptoms.
In the recent years, there has been more published in regards to African Americans and mental illness in media articles and books. I wanted to extend the conversation about mental illness from mood disorders such as depression to those whose mental illness diagnosis is categorized as a psychosis.
The Diagnostic and Statistical Manual of Mental Disorders 4th edition also known as the DSM-IV-TR is a manual used by mental health care counselors and other mental health workers to aid in the diagnosis of an individual. This text is used to diagnose both mood and psychotic disorders along with other mental health issues or abilities. Schizophrenia is categorized as one of many psychotic disorders with the following symptomology: distortions in thought content (delusions), perception (hallucinations), language and thought process (disorganized speech), and the lack of ability to self-monitor behaviors, disordered thinking, and emotional disconnection. Medication is prescribed for some disorders to either counter or balance the production of certain chemicals produced in the brain such as serotonin. In ideal instances, the medication aids in alleviating the symptoms while allowing the individual to live an active life.
NAMI (National Alliance of Mental Illness) found that Schizophrenia affects 2.5 million Americans. Although African Americans are only 12 percent of the American population, 25% have been diagnosed or treated for a mental illness with 3% diagnosed with schizophrenia or schizoaffective disorder. Further research has suggested that African Americans are oftentimes diagnosed with schizophrenia when in fact they may have other mental health issues.  This disease can have overwhelming implications for those who suffer from it as well as their families. In our family, my mother’s illness was never discussed. Instead, the episodes of giggling, audio and visual hallucinations, and delusions were referred to as “spells.”
 In discussing mental health issues with various people within the African American community, there is a misconception about an individual diagnosed with a mental illness versus someone who is developmentally delayed DD (formerly referred to as mentally retarded). One of the first steps in discussing the differences is defining each term.
What seems to occur in the discussions about mental illness versus someone who is developmentally delayed is a conflation of the two terms. In a conversation that I had with a health care worker in performing research for this text, she often said, “Well you know how child-like they are…” as a response to talking about mental illness. I often have to clarify that my mother is not developmentally delayed but even this term is complicated by the dual and recent diagnosis of dementia along with the Schizophrenia. What usually happens in these conversations is that I reemphasize the difference.
“Look,” I begin to explain. “My mother is a left brain thinker. She did calculus in high school—that stuff was fun to her. She taught me to read and write and to memorize my full name and address…”
Health Care Worker: “Oh, well…people with mental retardation can do that too?”
Me: “Even high functioning developmentally delayed people cannot do that.”
In short, her illness did not impact her cognitive ability but rather her perception of the world at large. It is not impossible for an individual to be developmentally delayed and diagnosed with a mental illness; rather, a mental illness does not necessarily mean that the individual is below average intelligence.
Secondly, the cause of developmental delay is usually attributed to genetic disorders or to factors that may have contributed to the development of the embryo in-utero such as substance abuse or birth defect amongst other factors. The range of ability for those who are developmentally delayed is described in three phases from Mild to Moderate to Severe Mental retardation. Individuals diagnosed as DD if mild, can acquire academic skills up to the sixth grade, learn basic vocational skills, and may be able to live independently with minimum guidance and supervision. Those who fall within the Moderate range demonstrate less ability to acquire academic skills up to the second grade, perform self-care, and learn basic vocational skills. DD individuals who are severe require assistance with personal care, have limited ability in acquiring basic academic skills and need full-time supervision. All levels may demonstrate an inability to socially interact with their peers but not always. Still, how can I describe the differences and why is it important to understand this?
In clarifying the differences, it is not my desire to place developmentally delayed individuals or their families under a shroud of shame. Each category deserves its distinctions and may require different treatment plans. It should be said that even within the range of people diagnosed with a mental illness, there are those whose diagnosis may have affected them so much that they need daily supervision and assistance in living their lives. I wish that my mother could have had this type of help so that she could have lived a productive life. She is an intelligent woman whose life was severely impacted by paranoid schizophrenia so much so that it cut off all avenues to a full life filled with family, friends, and achievements that she could proudly claim.
During the late sixties-early seventies when my mother was officially diagnosed, few people mentioned mental illness. It was not a mainstream topic nor one that took place within the community. This was also a period when mental institutions such as Camarillo Hospital had phased out permanent institutionalization of the severely mentally ill/disabled but offered no community support in its place. Most health insurance plans did not cover long-term mental health care treatment and many current insurance plans only offer limited if any mental health treatment.
Over the years, I have met other African Americans who have/had relatives diagnosed with a psychotic disorder. Our conversations tended to be closeted and it is only recently that a public dialogue on mental health has taken place in mainstream culture. In African American culture, mental illness is viewed from a myriad of perspectives, most of which is not helpful or useful in understanding our loved ones.    
Our family coped as most other families coped during that period.

Avoiding the Man in the Mirror

In a study conducted by Mental Health America of Colorado found that African Americans are least likely to seek treatment for depression. Although the study’s focus primarily deals with depression, I found that it is likely true for a broad range of mental illnesses. These statistics reflect the beliefs that are dominant in the African American culture:

* 63% of African Americans surveyed believed that depression [mental illnesses] are a personal weakness, compared to the overall survey average of 54%.

* Only 31% of African Americans said they believed depression [mental illness] was a health problem.

* Almost two-thirds of respondents said they believe prayer and faith alone will successfully treat depression [mental illness (es)] “almost all of the time” or “some of the time.”

As a child, there had been rumors about the mother of one of my friends who was also diagnosed with a mental illness and whose pastor had performed an exorcism to rid her of the voices. I cannot verify whether this is true or not because no one who is around to talk wants to remember or, they want to forgot.

Religion is a vital component in the African American community because it has helped us survive slavery, become proponents using biblical text for the abolishment of slavery, and was integral to the Civil Rights Movement. On a personal level, it enables many individuals to survive the harshness of etching a living, personal and situational strife, and as a safe harbor.

          My mother considered herself a Christian who not only believes in being reborn but who has also made claims of meeting Christ during her psychosis. She has always held firm to the bible even though she cannot concentrate on its content. Faith can be an important component in dealing with a mental illness for the individual diagnosed and the family however, it is important not to dismiss mental health care as something less important than the care given to the physical body.

What’s God Got to do With It??

And when he was come to the other side into the country of the Gergesenes, there met him two possessed with devils, coming out of the tombs, exceeding fierce, so that no man might pass by that way.

Behold, they cried out, saying, What have we to do with thee, Jesus, thou Son of God? art thou come hither to torment us before the time?

 And there was a good way off from them a herd of many swine feeding.

 So the devils besought him, saying, If thou cast us out, suffer us to go away into the herd of swine.

 And he said unto them, Go. And when they were come out, they went into the herd of swine: and, behold, the whole herd of swine ran violently down a steep place into the sea, and perished in the waters (Matthew 8:28-34).

When we have a family member with a mental illness where our loved one behaves in a manner that is far, far more extreme than what is acceptable, we look to negative outside forces to blame. My grandmother would sum up all trials and mishaps as “ain’t nothing but the devil.”

“I know you young people don’t believe in this, but I believe that someone worked hoodoo on   your mamma.”

“Why do you think that? I asked.

“Cause your mamma had a lot of people jealous of her. She was pretty and smart.”