Author: Krafty Woman

Schizophrenics Need Their Cigarettes

My mother was a true smoker of cigarettes. She smoked approximately 4 packs a day- no exaggeration. Ruby was also excellent at money management in order to afford this habit as well as having family members that would send her money from time to time.

Every day, she lay in bed and smoked. During my childhood, she would have these fits of laughing and crying between puffs of cigarettes. If I have not mentioned it in prior post I will reiterate here. Our white walls were brown with sticky tar. The tar was so thick you could draw in it. And no, I’m not writing this for effect or hyperbole, it was bad. And, even though she confined her activity to her bedroom, there was no way it would not affect the rest of the household.

As a child, I smelled of nicotine. It permeated everything I wore including the hair on my head. I am surprised that I did not contract asthma or any other lung related disease. She would not empty her ashtray until the last pack was smoked. I was breathless watching her do this.

I snuck a cigarette to try on my own. She knew it because she was a natural accountant at knowing how much she smoked. Needless to say, I truly hated it and quickly put out the cigarette and snuck it back into her carton as if she would not figure it out. Next to beer, it was the nastiest taste I had known. I wanted her to stop and decided that the best way to do this was to destroy her cigarettes.

Somehow, I snuck a pack of her cigarettes from bedside and took them out of the package and took them outside. I stared and stared until my resolve stood firm and I began to smash them. When I close my eyes, I still feel the tobacco under my fingers which only fed my despise of the dammed things. After I was done, I quietly stuffed them back in the package, and placed them in the carton.

Like most children, I had long forgotten about the wrong I committed less than an hour ago. But it caught up to me in the worst way.

My grandmother was someone who did not spare the rod so I was not unfamiliar them down-home-south-ass-whoopings. But, this was not one of them.

Ruby went off on me like two grown women fighting on a street corner over a man. She lit into my 9 year old self like she didn’t know me. I couldn’t fight back. I couldn’t protect myself. My grandmother couldn’t protect me either and was helpless in trying to stop it. When she was done, she went back into her room as if the beat down was cathartic to her.

Years later whenever I brought up that incident, Ruby claimed that she never remembered it. I believe her. She was not the one who dispensed punishment in our house. She wasn’t a proponent of spanking as the first cure for bad behavior. But that day, my mother let me know exactly where she stood on her addiction to cigarettes.

 

To Have or Not Have Children

“Should I have children?” a young woman asked me some twenty years ago. We were both in college and had grown familiar enough with one another that she knew about my mother. The young woman was recently discharged from the military due to her being diagnosed with schizophrenia. She belonged to a church community and had come at a crossroads in her life where her biological clock was ticking. She had also  been released from another hospitalization in the psych ward recently

I breathed in deeply and thought about my answer because I definitely had an opinion about this topic. As I sat across from her, I thought of my own childhood of emotional neglect and the fact that my mother did lose custody of me and my siblings to the county. I remembered her 4 pack-a-day smoking that left the walls covered in brown tar. I remember her fits of giggling and crying and being frightened and not knowing what to do. But here is the answer I gave.

My response? I can see that the drive toward motherhood is strong in you; however, your diagnosis makes it nearly impossible. The only reason why my siblings and I survived our childhood is because of the heavy intervention of family. They fought to keep us. My grandmother raised me, my siblings were adopted by other family members who lived in another state. My mother, eldest sibling and I lived with our grandmother. She was the cushion between my mother and us. We had extended family nearby. All of these factors produced survivors who did not get to experience the joy and love that occurs between most parents and their children.

Who will care for your children if you are hospitalized again? Family? Your church community? Friends? If you marry and later divorce, it won’t be too difficult declaring you an unfit parent especially since your resources are limited. Are you self-aware enough to realize that you must take medication for the rest of your life?? Finally, child-rearing can be very, very stressful even for parents who have good mental health. They burn out and need a break despite their love for their child(ren). Children, especially small ones, require extensive attention and are not aware of anyone else’s needs including their parents. 

A full night’s sleep is a necessity that won’t be a part of your life anymore. Can you place their emotional and (physical) needs above your own because ultimately that is what parents must do. Forget waxing poetic about parenthood; can you deal with the worst of it and raise reasonably mentally healthy children?

 Below is a link to an article with a parent who is making a decision about her children’s care partially as a result of her mental health diagnosis.

http://www.sheknows.com/parenting/articles/1127383/sending-my-son-with-autism-care-facility

 

 

Remembering the Good Times

Was my childhood all negative? Almost nothing is one extreme or the other so I have to bring some of the positive aspects of my childhood into this ongoing conversation about having a parent with schizophrenia.

Ruby was never one to over praise children for their cuteness, especially her own. Instead, there was an emphasis placed on learning. As soon as I could speak, I learned to memorize: my full name, my mother’s name, my phone number, and my address.

Being a country gal, my mother was used to walking long stretches and we did not have access to a car nor did she choose to take the bus. We would walk block after block to the playground and to the library-my favorite place on earth! We checked out books which were later read to me. At some point, I was able to read to myself before beginning school. I can’t remember a time when I didn’t know how to read and sound out words.

With these skills, I was able to spell out the words on my grandmother’s prescription bottles because her eyesight had worsened over the years.

Another way in which Ruby contributed to my life was her enduring patience. See, I was one of those children who asked many, many, “What if” questions.

“Mamma, What if I could hypnotize all grownups to give me candy…”

She would answer my question with great patience but then I’d go on to ask another following a line of logic (at least it was logic to me at that time!) until I had exhausted all the possibilities. Never did she yell or scream at me for my endless questions. I wish I had her patience! LOL!!!!

Finally, was her willingness to indulge me in a game of thumb and/or arm wrestling. We played these games well into my late teens. She remained stronger than me until her body weakened. These were the times when we would laugh and giggle and she would accuse me of allowing her to win.

These snapshots of our time together are assembled so that I can remember that in moments as rare as blue moons, I truly got to be her child.

Unsure of What to Do

Recent events have influenced me to revisit the issues of law enforcement, mental illness and being African American or other persons of color.

Those who work in the mental health profession from social workers to marriage and family counselors are by law obligated to inform law enforcement if a client presents symptoms of self-harm and/or the willingness to harm others. However, they cannot prevent the outcome of any critical situation. Law enforcement will follow-up with a visit to that client’s home or wherever they happen to be located to assess them to see if the client needs to be taken into custody.

When our loved ones are in obvious psychological distress, we are told to call law enforcement in order to prevent self-harm, harm to others, and sometimes we may be the ones in danger. In light of recent events, it could be “dead if we do and dammed if we don’t” call for help when we need it.

In 2011, Kelly Thomas a young white man diagnosed with schizophrenia was beaten to death by Fullerton police. An unknown call was made to law enforcement that parked cars in the area were being burglarized. I don’t know if Thomas was the perpetrator or not; nevertheless, he was beaten to death by Fullerton PD as he pleaded for his life.

If these actions are indicative of what law enforcement agencies will handle the mentally ill population, then this does not bode well for us at all.

Snapshot of the Past I

That was my nickname for Ruby as well as calling her “Little Mommy.” She was 5’3 and on the chunky side; not so little; however, with growing older, she lost inches in height and weight. Nevertheless, “Itty-Bitty” was formidable.

We lived in South Central Los Angeles near the stroll in the 1970s. The stroll or Figueroa in our city is that place where one can find a hooker. Directly across the street from us was the church my family attended. Everyone that is, except “Itty-Bitty.” She was a born-again Christian through and through, but seldom left the house.

Every Sunday, my grandmother and I crossed the street to attend church. First, I went to Sunday school and later I would go home to retrieve my grandmother for church. She could walk just enough to cross our little street.

It began to slowly dawn on me that my mother rarely left the house. She did the family laundry in the machine and hung our clothes to dry on the side of the house. She read her bible every day and prayed but never ventured beyond the yard.

“Why” I would ask, “don’t Mamma go to church with us?” My grandmother responded, “She’s not feeling well…” and that’s where the questioning ended.

As I grew to become more aware, I realized that she never felt well enough to go to church or anywhere that was not absolutely paramount to our well-being but even that could be argued.

As soon as I was old enough to cross Figueroa by myself, I would take myself to the doctor’s office whenever I got sick. When I contracted chicken pox in the second grade, “Itty-Bitty” took me to the doctor as well as going to school when I received the health clearance to return. After second grade, I was on my own at the doctor’s unless it was an absolute emergency or procedure.

Our family doctor and his nurses knew my family well and knew that we lived across the street. I would go to the doctor, sign myself in, give them my medical card and wait until the nurse called me in. I would write down his diagnosis and instructions. The pharmacy was downstairs and the nurse would call in the prescription. And yes, I wasn’t even ten years old yet.

The next time she attended a doctor’s appointment with me was in my teens when my wisdom teeth were extracted. Because this procedure required anesthesia,  parental consent, and a ride home with my cousin, she had to be there.

Too Long Hiatus

I have been gone for over two years and as many of you know, it can be that way when you need to take care of your own mental health. Since the last blog which seems like so many years ago, I have been gathering the strength to return to the blogosphere to continue the conversation that I interrupted. I thought that I could simply move on as if my life had been temporarily placed on hold; I was wrong.

At first, I dreamed about my mother almost every night to a point where I honestly didn’t know if she were dead. Before I could begin my day, I had to spend a few minutes each morning convincing myself that Ruby was gone and that this, was my new reality. I couldn’t shake it because I wasn’t convinced. How could she be gone??? But I was there with her body until the mortician came and gathered her. The concreteness of this detail kept me cemented in reality. Our relationship was close but troubled. It was very painful at times with bits of sweetness sprinkled in just enough to where I learned to love my mother instead of fearing her.

I invite you to return and read if you wish. There is so much more to come.

Comorbidity

As a child, Ruby spent most of her days alone in her room smoking, giggling one minute and then crying in despair the next. Even though her main diagnoses was Schizophrenia, I can’t help but feel that depression was another illness that affected her. Also, I had never heard of the term “comorbidity”- that is, to be diagnosed with more than one mental illness. So Schizophrenia was all I knew. I didn’t know how ignorant I was until I spoke with a friend of mine whose mother was also diagnosed with Schizophrenia.

His mother would get dressed, leave the house, and be social despite her illness. I wondered about that when he told me. Was she that woman? You know, the one who walked the streets mumbling to herself, crazed look in her eyes? Did she have moments of clarity where she interacted with people out there on the streets? I never asked.

One reason that Ruby was so antisocial is she hated her appearance. After four children she went from a brickhouse to a mini-mansion. Her skin was pocked with acne. Her wardrobe consisted of house dresses/muumuus that she wore day in and out. She never bothered to fix her hair and instead wore it under a scarf.

I know now that some psychotropic medications can have side effects such as making you gain weight and other effects. This is truer with the medications of the past forty years.

Nevertheless, her self-hatred led to isolation that was unbroken. If I wanted to see my mother, I had to walk into her world; that room that was so filled with smoke that the walls were covered in tar. I would sit with her breathing it all in. Sometimes she would talk or ask me to sit on her belly to flatten it and I would comply. That was as close as she would come to a hug or any type of affection.
In reflecting on these memories, I can you that serious mental illness affect everyone in the family and when you’re a child that does not understand “mommy’s strangeness,” you tend to blame yourself.

 

Reflecting on the Past Week

I was asked recently how could I sympathize with someone like Ebony Wilkerson ? She didn’t have to take her children with her into the ocean and could  have just taken her own life. I shrugged in response because in the face of the overwhelming universal truth that most of us believe, “Mothers are supposed to protect their children-not hurt them” we truly become the persecutors of anyone who doesn’t uphold motherhood ideally.

In truth I definitely feel two ways about it because of my own experiences with my mother while at the same time acknowledging that an injustice has been done to the children and that Ebony needs compassion.

I may have written this previously but I will rewrite it. One of the final straws that led to Ruby (our mother) being diagnosed was that my younger brothers and I were woefully neglected-unfed and dirty. We were one infant and toddlers with no control over our circumstances. Not even my eldest brother who was approximately 11 at the time knew what to do. Her actions were not done as a punishment to us or to herself. When your loved one loses their mind, they truly do not know that they have lost it. That is what makes convincing them to go to get help difficult and to remain on their medications a constant battle.

Now that Ebony is in custody, she may be offered the help she needs. She also has a choice not to accept help for her psychiatric issues and in most cases she has that option. I believe that individuals who commit a crime of this nature should serve time because it may be the only way for them to acknowledge that they need help and that without it, worse could happen again. Incarceration of the mentally ill who have committed a violent crime should include mandatory medication and ongoing counseling otherwise, it does no one justice to sentence the insane because it is hard to be accountable for your actions if you’re not all there.

The children will have the most difficult road to recovery and will have their own issues to deal with. Hopefully, they are also receiving counseling. I hope that the family does not denigrate Ebony in front of her children because living with hatred of one’s mother is harder on the children than it is on the person being hated. One day, I hope that they are able to understand-they may never forgive or reconcile with her but forgiveness does not necessarily mean reunification. It is coming to a place in one’s life where you accept the past with its ugliness and flaws and choose how to continue on.

 

Wall of Voices and Sound

This collage is how I saw Ruby’s struggle with auditory and visual illusions.

When an Almost Tragedy Strikes Due to Mental Illness

I do not want to post another report of the incident in Florida involving Ebony Wilkerson who drove from South Carolina to Daytona, Florida with three children in tow to drown them all by driving her van into the ocean. But, I do have to comment on this case because it requires something from us that is most difficult; compassion. Compassion for Wilkerson’s children and most of all, for Ebony herself. I do not personally know any of the people involved; however, I do not believe that under normal circumstances that Ebony would have made this decision to end her and her children’s lives. She was in both a spiritual and emotional crisis.

Ebony’s family were very concerned about the state of her mind and called police for assistance prior to the incident. Law enforcement responded and found her sound enough to allow Ebony to proceed to what they thought would be a women’s shelter because of the tumultuous relationship she had with her estranged husband.

Each day something new is revealed about this story but so far, it seems that everyone did all that they could. In most states in the U.S. it is very difficult to have someone committed to a psychiatric ward unless they pose an immediate danger to themselves or others. Obviously, Ebony Wilkerson was both but there was insufficient evidence to proceed in having her committed.  This is one of the frustrating factors for people whose family members are mentally ill until it is too late. The burden of proving that your loved one is mentally ill rest on your assessment which is often not valid enough, until after a mental health professional has made an official diagnoses. Whenever I hear about these situations, I wonder; “What could the family have done to prevent this?”

Now Ebony Wilkerson will become a part of the largest statistics to date; African American and incarcerated (Munetz et al, 2001). She will face charges relating to trying to commit an act of murder-suicide. If convicted, she will spend time in prison and “maybe” she will receive the help she needs.  There are folks out there who say, “She needs to go to prison! She should’ve ended her own life and left her children out of it!” However, I have found that these same critics would have dissuaded her or have dissuaded their own mentally ill family members because, “Black folks is always stressed-you don’t need to be seeing no psychiatrists!” Again, Ebony’s family followed the right course of action which shows that there are no guarantees even in an idea situation. In Ebony’s case, it was good Samaritans that rescued them all.

Munetz, M.R., Grande, T. P., Chambers, M. R. (2001).  The incarceration of individuals with severe mental disorders.

Community Health Journal,  37(4), 361-372.